Chronic Lymphocytic Leukemia

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Around the age of 5, Ruth Schorr, daughter of Patient Power founder Andrew Schorr, became aware that chronic lymphocytic leukemia (CLL) was a presence in her family's life. Ruth shares the impact the disease had on her relationship with her father, her childhood and her overall outlook. She offers her advice for children and young adults to help pr...
by:patientpower | 38 views
Diagnosed with chronic lymphocytic leukemia (CLL) in 1999, Rich Siegel took the news hard. But following several months of initial shock, he found a way to put the disease in the background and move on with the goal of living life to the fullest. Rich shares his story and his advice for other people with CLL. Get email alerts | http://www.p......
by:patientpower | 47 views
Where do MPNs come from? Do environmental factors influence whether you will get an MPN? Dr. Alison Moliterno from Johns Hopkins Medicine explains researchers' discoveries about chemical exposure and other environmental factors related to the incidence of MPNs. Get email alerts | http://www.p... Subscribe on YouTube &...
by:patientpower | 86 views
Until recently, Pat Ford had only told close friends and family about his CLL diagnosis. Pat has been in "watch and wait" since 1996, and he initially felt like "an atomic bomb" went off in his brain. Over the years, he has adopted a new attitude about CLL, and he explains why he feels sharing his story could help newly diagnose...
by:patientpower | 62 views
At the iwNHL 2014, Prof Eva Kimby and Prof Susan O’Brien provide an overview of their understanding of mantle cell lymphoma. Current treatment strategies are discussed. There is a focus on ibrutinib therapy for patients who relapse after first-line therapy and a comparison is made with its use in treating chronic lymphocytic leukaemia. Future trial...
by:EMJ | 53 views
Patients often wonder, could having one CLL treatment now prevent them from taking another option in the future? Leading CLL researchers, Dr. David Maloney and Dr. John Pagel, discuss what approaches could limit therapy choices down the road and stress the importance of a long-term planning conversation between doctor and patient. Get email aler...
by:patientpower | 489 views
Recently, many approved and developing CLL therapies have aimed to inhibit rather than destroy cancer cells, often replacing the more toxic chemotherapy standard. BTK and PI3K inhibitor classes have become familiar terms to CLL patients as more drugs are added to the list of treatment options. But what other classes are emerging? Dr. David Maloney,...
by:patientpower | 365 views
Often, patients wonder, "What is small lymphocytic leukemia (SLL) and how does it differ from chronic lymphocytic leukemia (CLL)?" A leading CLL expert, Dr. John Pagel, explains the biology of SLL and the approach to treatment, including a drug recently approved for the disease. Get email alerts | http://www.p......
by:patientpower | 1288 views
Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospitals gives her perspective on the challenges that CLL patients experience when managing their symptoms. A theme running through the video is the importance of keeping the medical team informed and working together to find strategies and support to reduce impact. Q...
by:PatientPowerEU | 417 views
With many therapy options to consider, how can patients best discuss their CLL treatment options with their doctor? A CLL expert from Seattle Cancer Care Alliance, Dr. David Maloney, discusses his approach to determining when to treat and what factors—includi​ng age and pre-existing conditions—he con...
by:patientpower | 699 views

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